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Controversy

A certain school of doctors and professors of psychology have tried to re-frame the M.E-diagnosis as something psychological. Their cruel political acts have successfully created confusion around the diagnosis and have hindered real research from happening.

As mentioned, myalgic encephalomyelitis has been a confirmed neurological illness since 1969. Still, because of this group of ‘psychiatry’ doctors, the patients have been denied real treatment and ignored or abused for decades.

ME-patients have not been believed and have only been offered Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT).

This same school of incompetent doctors now try to label post-covid (long-covid) as a psychological disorder too. Hopefully, they will be fought back this time, for good.

Change is happening

Cochrane has withdrawn a review on GET/CBT-treatment

Reuters Bureau announced on October 17, 2018, that the independent international network – Cochrane Collaboration – had revoked a review article on the positive value of Graded Exercise Training (GET) and Cognitive Behavioural Therapy (CBT) in Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (ME/ CFS). A recent publication has pointed out several, serious flaws in the review invalidating the positive conclusions on GET and CBT.

Scandinavia

Swedish Health Authorities have published a consensus on CFS/ME

Exert from the analysis of the current knowledge state regarding ME/CFS:

Considering the current … evidence, it is crucial that the interventions offered to each patient diagnosed with ME/CFS … must be individually adapted … This patient group is in need of care measures to alleviate symptoms and improve quality of life…. different evidence-based interventions can be offered on the basis of the symptoms presented…. The care provider must be perceptive and take all aspects of the patient’s medical problems and healthcare needs into account.

The Danish Parliament casts a unanimously vote to ensure acceptance of ME/CFS as a somatic disease

2019 marked a great change for the Danish ME/CFS-community when the Danish parliament voted unanimously in favor of the following text:

The Danish Parliament has noted the following: – That the care for patients with ME fatigue syndrome / CFS (G93.3) is deficient. Patients experience stigmatization and are not offered relevant investigations and treatments. – That existing treatment for ME patients is far from adequate and that specialized treatment of ME should be initiated. This should be done in an interdisciplinary setup with all relevant specialties and should be anchored in the somatic context. – That the National Board of Health updates all relevant guide-lines to ensure that ME / CFS (G93.3) is properly described. – That the National Board of Health recognizes and recommends the use of the WHO diagnostic classification system ICD10 and ICD11, which includes the diagnosis of ME (G93.3, ICD10 and 8E49 in ICD11). – That the National Board of Health and the Health Data Board, uses the new code practice to differentiate ME / CFS from the collective term “functional disorders”. – That knowledge is obtained from other countries and from initiated treatments of ME / CFS

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